Addison Faith Bender
01/02/2006 – 12/03/2007
My daughter, Addison Faith Bender, was one of the best gifts I have ever received. After two boys, we were thrilled to complete our family with a baby girl. She was beautiful, playful, and oh so sweet. Our little boys treated her like a queen. When Addi was 17 months old we noticed that she was continuing to tilt her head to one side. We took her to our pediatrician, who referred us to an orthopedic, who sent us for an MRI. The MRI confirmed what I knew in my heart, but didn’t want to believe. My baby had a brain tumor. At that time, I was thinking, “Okay, we have surgery, remove the tumor, all is well, and we live happily ever after.” Oh, how little did I know and how wrong I was. You see, Addison didn’t just have a brain tumor. She had an Atypical Teratoid Rhabdoid Tumor, AT/RT. After hearing from the doctors and searching the internet I was horrified. I saw cases of child after child dying within six months to a year after diagnosis. How could this be possible? With all the technology, the drugs, and the progress that has been made, couldn’t something be done to prevent the love of my life from being added to this list of dead children? Well, we did try all those things. Addison went through multiple brain and spine surgeries, radiation, and chemotherapy treatments that were so horrible that they almost killed her. The treatments we used to try and save her life were atrocious and she endured more than even seemed possible. Nothing worked. The tumor continued to spread and multiply throughout her body until on December 4, 2007 she went to Heaven. I held my baby girl in my arms as she took her last breath and when she left this world she took a huge chunk of my heart with her. I’m learning how to live with this gaping hole, but it will always be there and I will miss my baby girl until the day I die.
My hope and prayer and belief, is that someday, the naïve thoughts I had at the beginning of my journey will become a reality. I look forward to the day when all children will receive safe and effective treatments and will live a full life, free from cancer. With less than 4% of government funding being allocated towards childhood cancer research, the burden falls upon you and me. Our kids deserve more and together, we can make that happen. The organization that we created in Addi’s honor is working to do just that! www.AddisFaithFoundation.org
Thanks for watching over us, Addi. We all love you and miss you like crazy. See you in Heaven!
Daddy (Tony), Mommy (Amber), Big Brothers Trent & Riley, and Little Sister (Olivia)
We love you forever our Alex, our Champ…Mommy, Daddy, Ray and Will
Addison Jo Blair
Adler Bryce Shelbourne
Alexander Fabrizio Munoz
11/20/1997 – 11/11/2014
Alex, nicknamed “Champ,” was a high school freshman with straight “A’s” when he was diagnosed with a brain tumor, medulloblastoma, in April 2013. It was completely removed and Alex's prognosis was excellent. After brain surgery, Alex had to learn to walk again and had weeks of physical, speech, and occupational therapy. He underwent 6 weeks of radiation and weekly chemo, followed by one year of grueling chemotherapy. One week before his final chemo was scheduled, a routine MRI detected a recurrence of his cancer. He opted for a new protocol and had hope, even though he knew that the odds were against him. He was always so optimistic. When he would see concern on my face he would say, “Mom, stop worrying so much or you’ll miss out on all of the fun!”
We started a Facebook page called the Champ's Corner, and our town and surrounding communities rallied to support him. Donations and support began to pour in from across the country. Alex asked if all of the donations could go to children’s cancer research. Although he was in a wheelchair, Alex participated in a walk for pediatric brain tumors. That same night Alex had to be airlifted to CHOP because he developed a fever and went into septic shock. Although he recovered, he never walked again. In September 2014 a new MRI revealed our worst fears. The cancer had spread. We shared this devastating news and were deeply moved to see that “Team Alex” signs began to appear. They were everywhere--aligning main roads, in front of houses, in store windows, and on school and firehouse billboards. Our brave and sweet warrior died on November 11, 2014 with his loving family surrounding him. He was 16 years old. He worried about how his disease affected everyone he loved and he never once complained despite debilitating nausea and unthinkable pain. Over $170,000 has been donated to pediatric cancer research in Alex’s name. His is a legacy of a life lived with love, passion, curiosity, selflessness, and true courage.
Alex John Piniewski
Alexander John Whipple
06/29/2009 – 04/01/2011
Alexander enjoyed spending time with his cat, Max. He loved to play with his buckets and cups and popping the many bubbles blown for him. His favorite toy was Sammy the Seahorse who sang to him and brought him great comfort.
When Alexander was in the hospital, he enjoyed wagon rides around the unit to visit the other children and never failed to get a smile from those he rode by.
He was a fan of Pocoyo, Thomas The Train, Curious George and The Cat In The Hat. Alexander, lovingly known to all as “Alexander The Great”, loved to have books read to him. He was a wonderful little helper to turn pages and move ‘flaps’ when needed. He was the baby Jesus in the Christmas play at his church when he was only six months old.
He will be forever missed.
01/31/2006 – 01/14/2011
Alexis Agin, a native of Arlington, Virginia was diagnosed in April 2008 at the age of 2 with a brain tumor known as Diffuse Intrinsic Pontine Glioma (DIPG). Alexis’ piercing blue eyes were the window into her soul. With long blonde hair and an outgoing personality, she drew in all around her and quickly had a pack of followers wherever she went. Soon after diagnosis, Alexis underwent radiation and quickly became asymptomatic. From June 2008 until March 2009 she lived her life like any other healthy child, except that she still went to the clinic and had MRI’s performed quite frequently.
In March 2009, while still showing no outward signs of the tumor, she began a Phase I trial. Alexis was always able to a kid-- able to enjoy those things near and dear to her heart, even despite the fact that she had a brain tumor. Alexis loved all things pink and purple, she loved drawing with chalk, making pictures with stickers, and coloring. She had a love for painting that often would keep her occupied at the clinic for hours, even long after her appointment was finished. Alexis loved to climb, run, jump, slide and play outside. She loved riding her bike and her scooter, blowing bubbles and squirting water out of leftover syringes. Alexis demonstrated a precocious and adventurous side every chance she got. She loved playing with gumballs, rolling them all over as well as collecting them. She enjoyed throwing coins in fountains, as well as throwing eggs. She exuded energy that was well beyond what you would expect from a person battling such an aggressive brain tumor.
In March 2010 it became apparent that the tumor was progressing, a natural course with DIPG, which has a 1% overall survival rate. After trying several Phase I clinical trials, including one at CHOP and Sloan-Kettering, Alexis stopped treatment in October 2010. Alexis lost her battle on January 14, 2011, earning her wings two weeks shy of her 5th birthday. Throughout the course of her battle, Alexis demonstrated a courage that extended well beyond her physical age. She never asked why, and she never complained. She inspired literally thousands and transcended this earth to become a hero in a tiny body. We miss her each and every moment of each and every day. We will always love and cherish the time that we spent together on this earth. Soon baby, soon.
We love you, Mommy, Daddy and Gabe.
Alexis Teryn Shaw
04/12/1996 – 09/13/2004
Alexis was funny, silly, smart, sarcastic, sensitive, loving and kind. She loved music, animals, crafts, art, reading, playing games, friends and family. She had the most beautiful blue eyes and an infectious smile (she was always smiling!). She loved to laugh...I can still hear her giggles. She was very petite and thin which made her appear fragile, but she had the heart of a lion.
Our family is not the same without her here with us. We miss her more with each passing day, but we are grateful for so many wonderful, happy memories that will sustain us until we are together again.
To Infinity & Beyond Lulu.
All our love,
Mommy, Daddy, Miranda, Tamara, Kayla, Nana, Papa, Mama and all your aunts, uncles, cousins and friends
Alice Elizabeth Araiza
9/23/1986 – 3/5/2007
Alice was born exactly on her due date and was rarely on time after that. She was wise beyond her years and always showed a beautiful spirit and grace in everything she did. She loved being with her family, especially her brothers and sister.
She was 16 years old when she was diagnosed and twenty when she left her broken body behind to go to heaven. Throughout her four year battle against Ewing’s Sarcoma, she underwent 30 rounds and four different protocols of chemotherapy, 35 days of radiation and used 11¾ gallons of blood and platelets. Alice never lost hope as she fearlessly handled horrific bodily changes including hair loss and weight gains and losses.
When she was healthy she participated in soccer, track and horseback riding. Like most teenagers she loved her friends, music, singing, dancing, shopping and all animals. She enjoyed cooking and playing Sims on her computer. Her passion was buying shoes and purses. She liked to watch Rachel Ray, the Barefoot Contessa and Golden Girls. She enjoyed doing origami and knitting scarves during the long hours at the hospital.
Alice was strong, inspiring, and was never without a smile. Family members often remarked that in calling to, “cheer her up;” they instead were cheered up by her indomitable spirit and bravery. She was outspoken, funny, kind, generous, bright, fiercely loyal and stubborn to a fault. She fought heroically. Her beautiful, lightly freckled face, sparkling brown eyes and gorgeous smile will be missed every day of our lives.
Alijah Vance Raymond
Aliyah Rechelle Siddiqui
06/18/1998 – 07/01/2010
Aliyah Rechelle Siddiqui was born June 18, 1998 into the “sweet spot” between her brothers Mikail and Kadin. She was born healthy, beautiful and loved very much. We say Aliyah was born with extra spunk. An extra chromosome that led her to have Down Syndrome.
In 2005 Aliyah was 6 almost 7. She had a fever that wouldn’t go away and arm pain that caused many tears. She stopped using it altogether . A couple visits to our pediatrician ruled out infection and broken bones. A late night ER trip led to tests and blood work that told us what was causing the fever and arm pain. Cancer. April 16 our daughter, our sons’ sister was diagnosed with leukemia and immediately scheduled for surgery. The first of many.
Aliyah’s 2 year treatment plan turned into 5 ½ years. It was a constant schedule of chemo, oral an IV meds, appointments, ER visits, days, weeks, and months in the hospital, infections, side effects, multiple surgeries, bone marrow transplant, additional bags of stem cells and hearing the deafening word relapse too many times. She never gave up hope of getting better and her spirit was always strong.
July 9, 2010 at the age of 12 Aliyah was fitted with her most perfect set of angel wings. Special, one of a kind, just like she was.
There is no doubt we will remember all of the pain and fear going through childhood cancer with our daughter. We will also remember all of the moments that brought her happiness and that she was passionate about. Our sweet daughter ran out of time before a cure for her cancer was found. She never gave up the fight. AIM2Cure, Aliyah’s family and friends, will continue where she left off.
Hobbies: Cooking, singing, dancing, crafting, painting
Favorite TV shows: Rachel Ray, Spongebob Squarepants, America’s Funniest Home Videos, Diners, Drive-In’s and Dives, Dreak and Josh
Favorite Movies: Grease, Shreck 1,2,3, Cinderella, Disturbia, I Am Legend
Alyna Marie Judith Moore
Alyson Nicole Usher
07/13/20006 – 11/29/2012
Alyson Nicole Usher was born on July 13, 2006, she was a very happy and outgoing child. She was full of life and always wanted to make sure everyone around her was happy. She had two older brothers, Nick and Noah. Aly’s favorite colors were bright pink and sunshine yellow. She was full of sugar and spice, and her Pap often called her sassy and classy. Her Nunnie told her she was the end of the rainbow. She could be the princess and a tomboy. She participated in dance and gymnastics, but also loved softball and found ways to compete with the boys. Her family called her “Crusher Usher” because of her competitive spirit. Alyson was wise beyond her years, and was often called an old soul. She LOVED everything Hello Kitty, but was most comfortable in Puma running outfits. She enjoyed singing and dancing and often would dress up and pretend she was a star. She liked glitter tattoos of peace signs and butterflies, and enjoyed making any kind of arts and crafts.
On November 29, 2011 Alyson was diagnosed with DIPG, a fatal brain cancer with no effective treatment. She was given 6 to 9 months to live. She endured 6 weeks of radiation without anesthesia, several operations, needles and heartaches. She slowly lost the ability to walk and talk. In June of 2012, we were told that the tumor was advancing and she began hospice care. It would get very difficult to understand what she wanted, and very frustrating knowing we could not help her in any way. For a year she watched her brothers, cousins, and friends run and play and have fun, while she slowly declined.
Despite all of her suffering, her spirit remained strong. Through it all, Aly never complained, never asked why. Her faith was so strong, she faced each day with courage, bravery and trust. Alyson has been my inspiration. As her mom, I was blessed to spend every moment I could with her. She has taught me what it is to love, trust, and believe. On June 28, 2012 her oncologist at Children’s Hospital gave her 8 short weeks to live. She survived 5 months and 2 days longer than the doctors had said. Alyson passed away in the comfort of her home, tucked into her bed with everyone she loved surrounding her on November 29, 2012.
Even though she is no longer with us, her legacy will never be forgotten.
We love you Alyson Nicole Usher.
11/22/1992 – 04/09/2010
Amanda was such a ray of sunshine. She was so much fun to be around and brought much love, life and laughter into our home. She had the most beautiful contagious smile and a vibrant outgoing personality. She was kind and loving and extremely generous. She was a gifted athlete, fiercely competitive and always strived to be the best she could be. She was a three sport varsity letter athlete with a passion for running and a tremendous love for the game of basketball. She led by example and always gave 100% to everything she did. She was a planner with dreams of attending UGA and then becoming a 3rd grade teacher at Brookwood Elementary School. She was very stubborn and refused to accept "no" for an answer. She had great faith and trusted that God would take care of her. She said He picked her to get cancer because she was strong enough to handle it. She was strong willed and by far the toughest person we knew. She was our 17 year old daughter, and cancer took her from us.
Our world stopped turning in March 2009 when Amanda was diagnosed with cancer at the tender age of 16. She woke up on March 1st unable to empty her bladder. Upon diagnosis, we found out that she had stage IV cancer called rhabdomyosarcoma. She had a tumor in the bladder/pelvic area and it had metastasized to the lungs and bones. We were informed that she only had a 30% chance of survival but that did not detour us. We came out fighting, trusted in the Lord, had faith and believed she would beat the odds.
She endured 14 rounds of chemo which took 42 weeks, and 30 rounds of radiation on her bladder and numerous blood transfusions. She was declared CANCER FREE in January of 2010 but in the same breath, the doctor warned that the cancer had a 70% chance of returning, and if it did, it would be fatal. All I could think about was when there is a 70% chance of rain, it usually rains. We were happy but guarded due to this news.
Three weeks later she started having numbness in her right arm and leg. The results of tests showed the cancer had returned and there was a tumor in her neck, intertwined in her spinal cord. She had surgery to remove the tumor and endured an additional 25 rounds of radiation on her neck. We held out hope that maybe this tumor had been there all along and was not a "new" occurrence since the neck was mentioned back on a scan she had in June. Unfortunately that was not the case. Amanda never fully recovered from the relapse. The cancer continued to spread to her entire spinal cord and coated her brain. She entered the hospital for the last time on March 27th and went home to live with Jesus on April 9th.
During Amanda's 405 day battle with cancer, she still attended school and church every chance she got and somehow managed to keep smiling that beautiful smile. She said to me once, everyone deserves a smile...you never know what kind of day someone is having and a smile, just might make it better. Even with everything she was going through, she continued to think of others. That is why it is so important for us to try and put a smile on the faces of other children. I feel Amanda would be pleased.
Amanda was a fighter if there ever was one. She always gave 100% to everything she did and fighting cancer was no exception. She suffered immensely but always kept the faith and fought the good fight to the end. She was the picture of health upon getting sick but was not able to beat cancer.
Amie Alden Cataldie
01/15/1978 – 10/03/1982
Amie was the older sister of Sam and Lindsie. When Amie turned 3 years of age she complained of her ear hurting. There was nothing to be found wrong with the ear, but about a month later, in May of 1980, Amie was found to have medullablastoma, a type of rare brain cancer on the base of her skull. She had surgery and suffered a stroke during the operation. The cancer was widespread in the brain and our precious baby, now in a coma was given at the most 3 weeks to live. The radiation would have been too harsh for her fragile state. We brought Amie home and in that following October after many months of care, God gave us a miracle and Amie came out of her coma. She learned to walk with a walker, talk and eat again on her own. She was such a determined little girl and was years ahead of her time in mind and spirit. She was in the local Special Olympics and was so proud of her medals.
She showed us and the people around her that you can overcome any obstacle. Amie was always with her precious smile and loved playing with her little brother and baby sister. Her all-time favorite food place was McDonalds and she loved the beach. There were many set backpacks along her battle with cancer and each time Amie told me that "I am going home" and she would in full force with that million dollar smile we all loved. But in early October 1982, her tumor returned to the original place and she was not able to have any more treatments. Amie told me that she would not be going home. Amie passed away peacefully and earned her angel wings on October 3, 1982, where she went home to God to live in peace and happiness and of course her million dollar smile.
Amon Lucien Siegel Moreno
Andrew Christopher Salazar
Anna Elizabeth Brooks
10/17/1999 – 04/16/2010
Anna was a full-of-life, free-spirited 10 year old. She was a competition cheerleader who also enjoyed gymnastics and softball. Anna’s true passion was singing and dancing on the Children’s Praise Team at church. She was in the 4th grade.
For several weeks Anna had some vague symptoms of headache, stomachache and an occasional fever, but always bounced right back after a quick nap. Nothing held her down or back. Finally she had some symptoms with her gums and the dentist wanted to do blood work. The results changed our lives. She was initially diagnosed with leukemia on April 10, 2010. Her official diagnosis was Acute Myeloid Leukemia 5-b. Aggressive and rare in children are the words I remember. Complications of DIC and tumor lysis were already present on admission to our local children’s hospital. We went to the hospital on Saturday, April 10, 2010. By Monday, April 12, 2010 she was placed on a vent because of the complications and to have her port placed for chemo. Anna never was able to be taken off the vent after that. She received chemo around the clock but leukemia was secondary to DIC at that point. Anna passed away only 6 short days on April 16, 2010. Many see her quick passing as a terrible tragedy. I see it as a blessing. Anna only had to know she had cancer for 2 days. She rested peacefully through the chemo and never had to fear the outcome. We talked the day we went to the hospital, and Anna knew without a doubt who was in control and if dying was her outcome she knew HEAVEN was her reward. She knew she would wake up to the face of her Almighty Savior.
The day I told Anna we had to go to the hospital she got mad because she was getting ready to go to the movies and couldn’t go. That’s how she lived. Even as sick as she was, she wanted to go to the movies. She lived until she simply didn’t. She lived BIG. She lived life to the fullest all her days. I miss her beyond belief but live with the hope that I will be reunited with her one day. I grieve but not like those with no hope.
WE LOVE YOU ANNA AND CAN’T WAIT TO SPEND ETERNITY WITH YOU!
Love, Mommy, Daddy, and Ben
Ariyanna Rose Miller
1/06/1993 – 10/27/2008
Our beloved son Andrew Santana lost his battle to a rare and aggressive cancer; Synovial Cell Sarcoma. He fought valiantly for the year, 1 month and 2 days that he was given from the day of diagnosis. He passed October 27, 2008. Our son NEVER gave up hope that he would fight and win his battle. He never complained about his cancer, his pain, and even when the cancer became terminal he did not give up the fight. He was a brave soldier from beginning to the very end.
5/9/1995 – 11/15/2009
Ashlee loved her big sister, Emily, horses, monkeys, and her dog, Bailey. On June 28, 2007, Ashlee was diagnosed with synovial sarcoma*, at the age of 12. After 8 rounds of chemo, 10 hours of surgery to remove the tumor and 6 weeks of radiation she was told in 2008 that the tumor was gone. She packed up her infectious smile and started junior high that fall. But in January 2009, the cancer had returned, this time on the left side instead of the right. Ashlee had more rounds of chemo and experimental drug treatments, which unfortunately had no effect.
Ashlee earned her angel wings on November 15th, 2009, at the age of 14. Ashlee was always optimistic and became an inspiration to many. She dreamed the dreams that most young girls do. She dreamed of prom, boyfriends, driving, college, marriage, children and so much more. She also wanted to be sure people became aware of Childhood Cancer and hoped the cures would be found. Ashlee loved life, her friends, and her family. She will be loved and remembered forever.
For more of Ashlee’s story, visit: www.carepages.com/carepages/ashleed
*Synovial Sarcoma is a rare form of soft tissue cancer which usually occurs near to the joins of the arm or leg.
12/12/2006 – 12/12/2010
In the spring of 2009, Anna Rogotzke was two years old – a seemingly healthy, very happy child who seemed to “sparkle” and light up the lives of everyone who knew her, especially her dad, mom and two older brothers. She seemed to want to sing, dance and giggle her way through life! She was a big fan of Dora the Explorer, Disney princesses, pink, purple, Bible songs, and anything having to do with music and dancing.
Three months after her second birthday, a tummy ache eventually led to a diagnosis of stage 4 Rhabdomyosarcoma. A grueling 54 week treatment plan was laid out for her.
Anna responded well to her treatment, which included several surgeries, many rounds of chemo, and weeks of radiation. When her treatment plan was completed, she had No Evidence of Disease! Three months after her treatment ended, everyone was full of joy and hope when her scans still showed No Evidence of Disease.
Anna relapsed just one month later, and lived for three months after her relapse, but these final months were filled with much joy. Wonderful memories were made during a family vacation to Florida. Anna attended preschool a couple of days a week, which she absolutely loved. She also attended weekly dance classes, and only six days before she died she performed beautifully in her first dance recital.
Anna will always be remembered for the way she loved life and gladly proclaimed her love for Jesus, even during the difficult days. Her songs, dances, giggles, hugs, and kisses are treasured memories for all who loved her and were blessed to have their lives touched by hers.
Austin Gene DeHaai
11/16/2009 – 2/16/2011
Austin was our miracle boy who we waited six years for. He brought laughter and sunlight into our home. He was a happy baby who always had a smile on his face. He loved life and had fun no matter what he was doing. He hit all his milestones on time or ahead of schedule. He didn’t like to sleep, didn’t want to miss out on anything. Austin’s favorite thing to do was climb the stairs. We had a game we played called Where’s Austin? Anytime I said that he would come to me, take my hands off my face and give me Austin kisses, nose to nose and laugh. He loved the outdoors. He spent many hours helping his dad fix things around the house. We never had a clue he was sick.
In November he celebrated his first birthday. We noticed he was falling down more. On 11-24-10 he woke up limping and holding his arm funny. After a trip to the pediatrician’s office we were sent to the ER for a CT scan which turned into an MRI. They found a tumor on his brain stem. Later we learned it was Atypical Teratoid Rhabdoid Tumor (AT/RT) a rare fast growing tumor usually fatal in young children. Austin was strong and brave and kept that big smile throughout his cancer journey. We love you Austin forever. You will never be forgotten.
Autumn Marie Utz-Jarvis
3/28/2003 – 5/28/2010
Autumn was diagnosed with medulloblastoma on March 18, 2009. She went through surgery to remove the tumor and all of the chemotherapy and also radiation. On December 23, 2009, we were told that her cancer was no longer there and again in March 2010. She was a very brave little girl and fought her disease very hard and all the while she was always smiling and always looking for ways to enjoy her life and she made the best of her situation.
She had the most beautiful smile and a very contagious laugh. In April 2010, we took her to her Make A Wish Trip to Disney World and Sea World and when we got back, she was taken back up to the hospital and the next day, we were told that her cancer was back and this time with a vengeance and there wasn't much that they could do for her. She kept fighting for a month and still was smiling and taking everything in stride, but on May 28, 2010, we received the bad news that we had lost our very special angel.
Ava Lynn Sentell
Ava Rose Twardowski
Ava was diagnosed with Neuroblastoma on her first birthday. What started out as a sore arm turned into something unimaginable. After a biopsy of a tumor found in her abdomen, it was discovered she had stage IV neuroblastoma. We were admitted to Children’s Hospital Los Angeles and she began treatment almost immediately after diagnosis. After six months of treatment (which included chemo, surgeries, scans, blood transfusions and a bone marrow transplant) we headed to radiation. She was said to be NED (no evidence of disease). Five months later the cancer occurred in her brain. Brain surgery was followed by oral chemo.
Surrounded by her family, Ava took her last breath shortly after her second birthday.
Her spirit has left an impression that will never be forgotten.
Avery Judith Lubrecht
10/31/2003 – 08/08/2008
In April of 2008, Avery Judith Lubrecht was diagnosed with a rare form of brain cancer called PNET medulloblastoma. She was transferred from her local hospital in Ocean County NJ to Childrens Hospital of Philadelphia, 75 miles away. She was just 4 years old. A family friend and neighbor organized a candlelight vigil the night before Avery's first surgery in support of the family. That evening people began offering money to the neighbor asking that she give it to the family to help with expenses. This trickled into coffee cans with Avery's picture and story at the local little league fields, and at local businesses around town. Area newspapers wrote stories on the little girl and her family. Avery's Mom wrote a blog detailing their fight against cancer on Carepages called "AveryJ" and soon everyone had learned about the adorable little girl with curls and dimples, and people wanted to help. "Angels for Avery" was born. After Avery's death on August 8, 2008, Avery's legacy was continued with the Avery Lubrecht Foundation.
Ayden Michael Edelsberg
8/19/1995 - 08/31-2009
Becca Mueller was born on Elvis’s birthday January 8, 2003. She was diagnosis at age 7, August 2010 with 2 types of Leukemia AML & ALL called Biphenotypic Leukemia.
She was completed with her chemo treatments January 2013. Starting to have a normal life like going back to school, riding Roller Coasters, going to indoor water parks and just being a regular kid. Going to Big Time Rush Concerts and One Direction where her favorites. Math was her favorite subject and always was top in her class. Plus she got to go camping with her Girl Scouts troop too! She also got to enjoy hanging out with other cancer kids at Camp quality. It’s where cancer kids got to be regular kids for 1 week.
This lasted for over a year and a half.
August 1st, 2014 we heard the news Becca has relapsed. The journey starts all over again. This road is going to be more intense and challenging due to her previous diagnosis back from 2010. Doctors need to get her in remission again. Her little body went through so much in 2010, and now she had to endure it again. She needed to get a bone marrow transplant. Her little Sister Julia was the match.
On December 4th, 2014 she finally got her transplant. Transplant went well and had 100% of her sister’s cells, but she had to endure the side effects of transplant with her liver and kidney failure from the chemo and full body radiation treatments. On February 11th, 2015 she took her last breath. She is an Angel up in Heaven. Miss Becca will not be in pain any more, and be with Elvis singing Blue Suede shoes.
Bekah Mae Shayna Crowe
06/18/1998 – 07/01/2010
Bekah Mae was born March 8, 1998 as Rebekah Mae Shayna Crowe. She was the baby of the girls, born with so much dark curly hair and teeny tiny. She had very beautiful shy smile, and china doll blue eyes. Bekah was a momma's girl but make no mistake she loved her daddy very much. Bekah loved to sing to the radio and jump into the middle of whoever was getting a picture taken. Photo bombing was her form of fun and we have many many pictures to show and remember this. In her elementary school years, Bekah was in Cheerleading and Dance, She earned 17 trophies, and countless ribbons in city, state, and national competitions. As a teenager, Bekah began to see life in a different way. She saw it as "short" after losing her step father suddenly. She loved music by Martina McBride & Carrie Underwood, but she was just like any teen and loved One Direction too. She was the type of girl that if you were upset, she would hand draw a card for you just to make you smile. When she knew you were pulling her leg, she'd say, "Really?" in this low tone of voice. Bekah spent almost two full years on the road with her mom, who was a truck driver in her tween years. She was able to point out where every state was on a map, and "I've been to all but 8 states in my life, how cool is that huh?" is how she described it.
Bekah was diagnosed with Stage 4 Ovarian Cancer September 11, 2012. She fought very hard and tried to overcome all hurdles she faced. She kept the same ole sense of humor she always had, she was such a lovable young lady and had a pretty laid back attitude about the world yet firm she was not to be crossed either. Bekah accepted everyone she encountered as a person not for what they looked liked, or preferences, but for who they were. She maintained this attitude until the end. Bekah quietly went to sleep on Tuesday, and she quietly passed away the next day, Wednesday December 12, 2012 at 2:12 am with momma & daddy on each side holding her hands, and her sisters at her feet. Bekah was so loved in her short life, and is missed so much. Our lives will never be whole again with our baby girl gone.
08/19/1995 - 08/31-2009
Beaux had just turned 14 when he go his angel wings. He was a very content, happy, smiling baby who grew to be a kind, compassionate, funny smiling, happy-go-lucky young man. He was big brother and best friend to Luke and loved animals, especially his three dogs and a cat.
Beaux was outgoing, well-liked, well thought of, and fun to be around. He loved exploring the great outdoors, hiking, fossil hunting, camping, science, being with his friends and younger brother Luke, playing football, riding his bike, Xbox (particularly Halo), shooting his pellet guns with Luke from the front porch, funny movies, and South Park. We all had a lot of fun and laughs together.
In Jan. 2007, we took Beaux to the ER for horrible stomach pain. As the ER suggested, we followed up with his pediatrician who told us the “tumor” was most likely a “fatty tumor,” which was nothing to worry about.
However, in March 2008, again Beaux was taken to the ER for horrible stomach pain. This time they told us he likely had cancer that had grown much more over the last 14 months. He had surgery, and it was found to be pheochromocytoma (pheo) cancer. We were then told they had gotten it all. A few months later, once again he was taken to the ER, and we were immediately transferred to a children’s hospital, where he fought for his life while beginning chemotherapy. He continued chemo for a year.
The days he felt well were few and far between, but he didn’t complain. Beaux was very social creature who desperately wanted to be with his class at school, although he did receive many visits from friends and family at the house and hospital.
Beaux will be remembered by all who knew him as a gentle soul.
Beyden Gabriel Swink
Billy Joe Morgan
06/18/1998 – 07/01/2010
Billy Joe Morgan (B.J.) came into this world on June 3, 1992, the day before his dad’s birthday (June 4). BJ weighted 6 lbs. 11 ozs. which is his mom’s date of birth (June 11). BJ passed away on his mom and Dad’s 22 wedding anniversary (Oct. 21, 2013) at the age of 21 years old. When we stop and look at these dates it’s certain God loaned BJ to us. BJ was the most cheerful, outgoing, loving, caring, helpful, big hearted young man. He never had an enemy, he befriended people, and would turn their bad day into a great day. Every time you would see BJ he always had the BIGGEST SMILE on his face. BJ played football, baseball, wrestled, basketball since the age of 3 years old. BJ graduated 21st in his class, he was always on the Honor Roll since preschool; he never let I Can’t be a part of his vocabulary!
The day we told BJ he had cancer, he never let it get to him, he said, “Mamma it will be ok, I will fight this like a man, like coach Stewy did!” BJ had a dear friend, and coach at Tuttle High School, he watched battle brain cancer, and that journey gave BJ the strength to fight harder. BJ loved his football coach at Tuttle HS, Coach Koons, whom instilled in his players to always be men and fight hard for what they wanted 444. BJ would be having a bad round of chemo and he would reach down deep and pull his fight out 444!
BJ was diagnosed May 2012 with Osteosarcoma Stage IV with Pulmonary Mets.
Our son lost his battle Oct. 21, 2013 at OU Children’s Hospital in Okc.
BJ is our Guardian Angel, our hopes and OUR HERO! We will continue to share his story of courage with others, we will always hold his memory strong, we will always make sure everyone knows what an AMAZING YOUNG MAN HE WAS! BJ MORGAN TUTTLE TIGER FOR LIFE, 444
BJ QUOTE: Written by BJ Morgan May 2012
You can’t tell me it’s bad, You can tell me it’s going to be rough, You can tell me it’s going to be a fight,
And I’ll tell you I will never give up and I will see you at the finish line because I don’t give up and I will never stop fighting because I’m just getting started!!!
WE LOVE YOU BJ. LOVE ALWAYS, MOMMY, DADDY, BUBBA, BAILLY, SASHA, JIM, KY, CHUBBA, ALL YOUR FAMILY, AND FRIENDS. UNTIL WE MEET AGAIN.
Blake Alderman Turner
Blake Daniel Howard
9/12/2007 – 8/15/2011
Bo was born on Sept. 12, 2007 in Thomaston, Ga., a small town. He was a regular child doing all the regular things. Then, on August 21, 2009, he was diagnosed with medulloblastoma, a highly malignant brain cancer. He underwent brain surgery to remove the tumor. Then, three rounds of chemo and three stem cell transplants. After all of this, a saying came to be. Bo loved his movies and "Mr. Incredible" was his favorite. He became our "Mr. Incredible" for the strength he showed during this part of his battle. A phrase was coined and this is our life motto now. "BE BO STRONG!"
We enjoyed life to the fullest. Then, in March of 2011, Bo relapsed. He endured a second and third brain surgery. The cancer was progressing so fast, we had to begin radiation immediately. Bo, as always, took all of this battle with fearless innocence and unwavering courage that was truly a miracle to behold. Bo fought until his body wouldn't let him anymore. Bo's cancer spread to his liver, which is very rare. He left for heaven on August 15, 2011 surrounded by his family, toys and movies he loved so much.
During Bo's short, yet inspiring life, he touched many people including his parents. Bo's parents continue to fight and spread awareness for childhood cancer in memory and honor of Bo. He was a little boy with a huge spirit. He knew what he wanted and when he wanted it. Bo taught us that even in the face of such adversity that we can still teach the basic points of life: Faith, Hope and Love.
Bo is flying in heaven but we keep up the good fight. Just remember! BE STRONG!!! BE BO STRONG!!!