Below is a listing of resources available to families who are affected by pediatric cancer.
This list will grow over time, so check back periodically.
| "The National Childrens Cancer Society: " |
Their mission is to improve the quality of life for children with cancer and their families worldwide. They serve as a financial, emotional, educational and medical resource for those in need at every stage of their illness and recovery. In the United States, we ease the financial burdens that accompany major illness; give crucial support and comfort; and address the challenges of survivorship. http://www.children-cancer.org
| "Wigs for Kids:" |
A wonderful organization that creates beautiful wigs for children who could otherwise not afford a hair piece. http://www.wigsforkids.org
| "Lodging:" |
The Ronald McDonald House has facilities located around the world to help families stay near their children when hospitalized.
| "Assistance for Medications/Supplies:" |
First Hand strives to change childrens lives around the world, one child at a time. Our mission: To directly impact the health status of a young life. The Foundation helps with clinical necessities (such as medication and surgeries), medical equipment and travel related to a childs care. Additionally, the Foundation implores doctors, hospitals and equipment providers to discount their services below listed prices. Funding is distributed directly to the childs immediate healthcare provider. http://www.cerner.com/firsthand
| "Help Scheduling your other kids, meals, and other needs:" |
On-line scheduling help!! Friends, family, and community members can log on to see where you need meal coverage, transportation help for your other children, and any other needs you may have. Takes the scheduling juggling act out of balancing your regular life and your Onco life! Lotsa Helping Hands is a simple, immediate way for friends, family, colleagues, and neighbors to assist loved ones in need. It's an easy-to-use, private group calendar, specifically designed for organizing helpers, where everyone can pitch in with meals delivery, rides, and other tasks necessary for life to run smoothly during times of medical crisis, end-of-life caring, or family caregiver exhaustion. It's also a place to keep these "circles of community" informed with status updates, photo galleries, message boards,and more. www.lotsahelpinghands.org
| "Websites to keep loved ones informed:" |
If your social worker has not already set up a page for your child, take a look through the Caring Bridge and Care Pages sites, they are a great way to keep loved ones informed. Subscribers to your childs page receive automatic updates when you post an update.
| "Transportation:" |
For a listing of many transportation programs for families with medically needed travel, visit Mercy Medicals program page: http://mercymedical.org/about-us/programs Some of the organizations are region specific, but most are national.
http://www.patienttravel.org/contact.html Patient Travel, a charitable resource for families with medically needed travelincluding transportation to clinical trials.
| "Education:" |
Educating children in treatment and beyond can be an issue your school is not familiar or comfortable with and either you or the school may need support information. Reach out to Candlelighters for guidance and a copy of Educating the Child with Cancer: A Guide for Parents and Teachers by Nancy Keene. www.candlelighters.org or email them directly and request a copy of the book: firstname.lastname@example.org
| "Making Memories for Children on Hospice:" |
The Clayton Dabney Foundation: http://www.claytondabney.org/aboutus.php The Clayton Dabney Foundation for Kids with Cancer provides needy families, with children in the last stages of terminal cancer, assistance in creating everlasting memories. The assistance is arranged through the parents and is anonymous to the child.
| "Grief:" |
The Compassionate Friends, An organization in support of families and siblings. : http://www.compassionatefriends.org/about_us.aspx
The Mothers in Sympathy and Support Foundation: http://www.misschildren.org An organization in support of families and siblings.
| "Camps" |
Lists contact information for all of the Childrens Oncology Camping Association member camps though out North America.,/p>
Lists oncology camps by region and state.
| "Local Organizations by State:" |
NJ: www.francesfoundation.netThe Frances Foundation: Telephone: 732-410-2383
FLA: http://www.basecamp.org/?pid=about Base Camp Foundation provides a year-round base of support for children and families who are facing the challenge of living with cancer and other life-threatening hematological illnesses.
PA: www.joeyseagles.org Joeys Eagles offers emotional and financial support for kids and families in the Stroudsburg Area
NC: www.liftupfoundation.org The Lift Up Foundation offers financial support for families dealing with financial stress during their child’s cancer battle.
WI/MI: http://www.ourkidswithcancer.org Support for families with children with cancer, and for survivors of pediatric cancer in North Eastern Wisconsin and Michigan’s Upper Peninsula.
Minn: http://www.miraclesofmitchfoundation.org Miracles of Mitch Foundation helping families facing childhood cancer in many wonderful ways: financial and quality of life assistance.
NY/NJ/CA/New England: The Family Reach Foundation provides financial and other support to families facing cancer. Family Reach works directly with hospitals. Ask your Social Worker for assistance from Family Reach, and if your hospital does not have an affiliation with Family Reach, you can email them through their website: www.familyreach.org.
South Florida: http://americanfoundationcc.org Financial Assistance: American Foundation for Children with Cancer provides financial assistance to families with children who are diagnosed with cancer in Miami and surrounding areas.