Lilly was a happy, athletic 10-year-old girl who played travel soccer, swam on a swim team, and was a member of a dance troupe. She is proud to say that she was one of the fastest girls in the 4th grade. Around January 2009, Lilly began to experience pain in her leg. She was diagnosed with growing pains. For months, she would come home from dance practice and use a heating pad, or ice, and Motrin or Tylenol to help with the pain. In May of 2009, Lilly was diagnosed with Ewing's Sarcoma in her left femur. She received 14 rounds of chemotherapy at Bristol Myers Squibb Children's Hospital in Robert Wood Johnson, and had limb salvage surgery with Dr. Dormans at The Children's Hospital of Philadelphia. She now has a titanium rod that goes from hip to knee. Lilly spent 100 days at RWJ, where she was very social, engaging other oncology children in games and art projects. Through her "Love4Lilly Fund" she and her family, friends and supporters raised over $100,000 to create a "Tween Room" at RWJ, so older children would have a comfortable place to spend time while in-patient for their cancer treatments.
Lilly finished her treatments in December or 2009, and is now in remission, going back for periodic scans to be sure. She is happy, energetic, and keeping up with her friends. Her motto is "you have one life to live, so you better live it!" She is on a swim team to help with her physical therapy. She still dreams of playing soccer again, but for now she is committed to help build the playroom at RWJ and is a Junior Board member for Make Some Noise!
*Ewing's Sarcoma is a highly aggressive and malignant form of pediatric bone cancer, which can be found in both bone and soft tissue. Ewing's is caused by a genetic accident, which occurs when two chromosomes transpose at the time of fetal development. The recurrence rate for Ewing's is 50%, and has no known cure for recurrence.